{"id":88,"date":"2020-10-29T02:25:39","date_gmt":"2020-10-29T05:25:39","guid":{"rendered":"https:\/\/hemofilia.org.br\/?page_id=88"},"modified":"2021-05-25T22:11:24","modified_gmt":"2021-05-26T01:11:24","slug":"a-ajude-c","status":"publish","type":"page","link":"https:\/\/hemofilia.org.br\/?page_id=88","title":{"rendered":"A AJUDE-C"},"content":{"rendered":"\n<div class=\"wp-block-themeisle-blocks-advanced-columns has-1-columns has-desktop-equal-layout has-tablet-equal-layout has-mobile-equal-layout has-default-gap has-vertical-unset\" id=\"wp-block-themeisle-blocks-advanced-columns-b1f2fb73\"><div class=\"wp-block-themeisle-blocks-advanced-columns-overlay\"><\/div><div class=\"innerblocks-wrap\">\n<div class=\"wp-block-themeisle-blocks-advanced-column\" id=\"wp-block-themeisle-blocks-advanced-column-09bd7506\">\n<p>A AJUDE-C \u00e9 uma Organiza\u00e7\u00e3o da Sociedade Civil de Interesse P\u00fablico (OSCIP) que foi criada em 11 de setembro de 2001. Tem dura\u00e7\u00e3o por tempo indeterminado e Sede na cidade de Brasilia\/DF.<\/p>\n\n\n\n<p>A trajet\u00f3ria da AJUDE-C \u00e9 fiel \u00e0s suas origens, caracterizada pela inova\u00e7\u00e3o e ousadia em buscar as melhores pr\u00e1ticas de tratamento para a hemofilia e outras coagulopatias.<\/p>\n\n\n\n<p>Desde sua cria\u00e7\u00e3o at\u00e9 os dias de hoje, a AJUDE-C foi protagonista de muitos epis\u00f3dios relevantes no \u00e2mbito do Distrito Federal e at\u00e9 em \u00e2mbito nacional.<\/p>\n\n\n\n<p><br>Dentre os principais fatos e acontecimentos de relev\u00e2ncia, destaque para:<br><\/p>\n\n\n\n<ul><li>a organiza\u00e7\u00e3o da 1\u00aa Olimp\u00edada dos Portadores de Coagulopatias da Am\u00e9rica Latina;<\/li><li>a contribui\u00e7\u00e3o na organiza\u00e7\u00e3o do 1\u00ba Centro Internacional e Tratamento das Coagulopatias do Brasil, o segundo da Am\u00e9rica Latina;<\/li><li>a contribui\u00e7\u00e3o como organiza\u00e7\u00e3o social representativa junto ao Governo do DF na aquisi\u00e7\u00e3o do fator de coagula\u00e7\u00e3o recombinante de primeira gera\u00e7\u00e3o;<\/li><li>a produ\u00e7\u00e3o de artigos cient\u00edficos de autoria dos pacientes, familiares e de profissionais de sa\u00fade;<\/li><li>a condu\u00e7\u00e3o de projetos de pr\u00e1ticas esportivas como par\u00e2metro de tratamento profil\u00e1tico adequado; e<\/li><li>entre outras atividades sociais e culturais.<\/li><\/ul>\n\n\n\n<p>Pelo fato de a hemofilia ser uma doen\u00e7a rara, a AJUDE-C, em 2019, participou como co-fundadora da Federa\u00e7\u00e3o Brasileira das Associa\u00e7\u00f5es de Doen\u00e7as Raras (Febrararas).<\/p>\n\n\n\n<p>Atualmente, a Associa\u00e7\u00e3o atua para que o tratamento das coagulopatias seja realizado em um centro de refer\u00eancia instalado em uma unidade hospitalar, e para que o protocolo cl\u00ednico seja alterado.<\/p>\n\n\n\n<p>A LOGOMARCA foi elaborada por seus idealizadores no ato da cria\u00e7\u00e3o da Associa\u00e7\u00e3o. Tem evolu\u00eddo ao longo do tempo, mas permanece com caracter\u00edsticas semelhantes.<\/p>\n\n\n\n<p>Por ocasi\u00e3o da motiva\u00e7\u00e3o das atividades esportivas, foi criada tamb\u00e9m uma Bandeira Ol\u00edmpica. A seguir, as imagens:<\/p>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-image\"><figure class=\"aligncenter size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"400\" height=\"384\" src=\"https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/Primeira-Imagem-da-Ajude-C.jpg\" alt=\"Primeira Imagem da Ajude-C\" class=\"wp-image-213\" srcset=\"https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/Primeira-Imagem-da-Ajude-C.jpg 400w, https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/Primeira-Imagem-da-Ajude-C-300x288.jpg 300w, https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/Primeira-Imagem-da-Ajude-C-13x12.jpg 13w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><figcaption>Primeira Imagem da Ajude-C<\/figcaption><\/figure><\/div>\n\n\n\n<div class=\"wp-block-image\"><figure class=\"aligncenter size-large\"><img decoding=\"async\" width=\"400\" height=\"449\" src=\"https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/Segunda-Imagem-da-Ajude-C.jpg\" alt=\"Segunda Imagem da Ajude-C\" class=\"wp-image-214\" srcset=\"https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/Segunda-Imagem-da-Ajude-C.jpg 400w, https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/Segunda-Imagem-da-Ajude-C-267x300.jpg 267w, https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/Segunda-Imagem-da-Ajude-C-11x12.jpg 11w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><figcaption>Segunda Imagem da Ajude-C<\/figcaption><\/figure><\/div>\n\n\n\n<div class=\"wp-block-image\"><figure class=\"aligncenter size-large\"><img decoding=\"async\" width=\"400\" height=\"387\" src=\"https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/LOGO-da-Bandeira-Olimpica.jpg\" alt=\"LOGO da Bandeira Ol\u00edmpica\" class=\"wp-image-215\" srcset=\"https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/LOGO-da-Bandeira-Olimpica.jpg 400w, https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/LOGO-da-Bandeira-Olimpica-300x290.jpg 300w, https:\/\/hemofilia.org.br\/wp-content\/uploads\/2020\/10\/LOGO-da-Bandeira-Olimpica-12x12.jpg 12w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><figcaption>LOGO da Bandeira Ol\u00edmpica<\/figcaption><\/figure><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":104,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - 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